Tuesday, July 30, 2013

Cath update

Joshua has been out of the cath lab for a few hours. He has to lay flat until 5:00 this evening. They didn't have to do any ballooning so we will be able to take him home (back to the Ronald McDonald House) tonight.  He is doing an amazing job of resting quietly.  He is eating a popsicle and watching Teenage Mutant Turtles. When he finishes that he can try eating anything else he wants. He was ordering a  corn dog and ice cream when I left to get some lunch.  Yesterday that was his choice of lunches also.  We went to Arctic Circle yesterday with Rebecca for lunch. He knew exactly what he wanted. He could get used to eating corn dogs everyday.

Dr. Martin only had to coil off one long vessel that was taking blood where it didn't belong. There was another that could cause him to have too low of oxygen in the future, but they decided to just wait and see if it needs coiled off sometime in the future.  Joshua is having some issues with irregular heartbeats and SV rhythms instead of sinus rhythms. We are checking with cardiology to see if they are very concerned.

Joshua was not a happy camper this morning, but he is doing much better this afternoon. He is responding to the nurses questions and listening to them.  Surgery is scheduled for 8:30 tomorrow morning. We'll have to be here at 7:00. I am grateful for 7:00, we had to be here at 6:00 this morning.  Annie, the nurser practitioner said to plan for 7-10 days stay after a Fontan.  We can do this.

I am so grateful that everything has gone well this morning. I am glad I can sleep one more night out of the hospital before we start our stay. I am grateful for the new Ronald McDonald Family room at PCMC.  It is so nice to be able to fix lunch here and run back down to Joshua's room.

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